This segment of the
website introduces you to some informational resources that you
might find helpful. Web sites are constantly changing and adding
features and links. Support groups change in attitude. It is not
possible to monitor these resources, and some may contain material
which is contrary to my beliefs, or even in error. A listing does
not imply endorsement. For many years, I have dedicated my life to
teaching the difference between fibromyalgia (FM) and chronic
myofascial pain (CMP) due to trigger point (TrPs.) Fibromyalgia is
fundamentally different than myofascial pain, and the difference is
important. (1) There is no such thing as a
fibromyalgia trigger point, and this error can harm you.
Those knots in the muscle and the taut bands in your body are TrPs,
not FM. Those specific pain patterns are TrPs, not
FM. Fibromyalgia doesn’t cause localized pain such as low back pain
or hand pain, it only amplifies it. We need to look at the pain and
other symptom generators as well as the amplification
process. Physicians seeing only the FM component—the central nervous
system dysfunction— will not look for mechanical perpetuating
factors such as short upper arms or repetitive motions. They will
miss the significance of the non-pain TrP symptoms such as
dizziness, toothaches, or buckling ankles. Physical therapists will
be trying to strengthen weak muscles, not understanding that the
muscles are weak due to TrPs and strengthening exercises will make
TrPs worse. Patients will be enduring needless pain and costs of
medical testing and procedures because their care providers are not
trained to diagnose and treat TrPs. There is a lot that can be done
to ease the symptoms of TrPs and a lot you can do yourself to treat
them and prevent their recurrence, but first they must be
recognized. Myofascial TrPs are the elephant in the room that FM
“experts” can’t see. They don’t understand it and haven’t learned
what to do about it. Admitting it’s there would invalidate much of
the medical research on FM, because many conclusions were based on
all symptoms coming from FM. Many of those symptoms are due to TrPs.
The pain signals coming from TrPs are enough to maintain the central
nervous system sensitization of FM (2). Control of TrPs
is crucial to many if not all TrP patients. Unless they understand
myofascial TrPs, the “experts” are missing a key concept in chronic
1. Simons DG, Travell JG, Simons LS Travell and Simons’
Myofascial Pain and Dysfunction: The Trigger Point Manual Vol I, ed.
2. p.18. Baltimore: Williams and Wilkins.
2. Staud R. 2006. Biology and therapy of
fibromyalgia: pain in fibromyalgia syndrome. Arthritis Res Ther.
At one time we listed individual local
support groups. Since the average age of a support group is less
than a year, and the number of support groups is multiplying rapidly, we
are no longer able to offer this feature. Many local support groups
are listed with national support organizations, such as the National
Fibromyalgia Partnership, the Fibromyalgia Network and local hospitals.
FIBROM-L Support and Discussion Group
discussion group is known as FIBROM-L. Anyone wishing to subscribe
to the discussion group may do so by going to
discussion on healing, from the perspective of mind/body/spirit by
patients, practitioners and others who are interested in exploring those
ideas and therapies which view the person as a whole.
subscribe, send an
message and in the
body of the message, put subscribe mbs-healing.
Chronic pain and health info
conference for those
who want a better understanding of sickness and disease, including pain
[and treatments] and especially HEALTH POLITICS.
posted to this forum includes Gulf War illnesses, radiation sickness, the
environment, drugs and abolition of restrictive laws which prevent
availability of narcotics for pain when essential for maintaining quality
subscribe, send an
message and in the
body of the message, put subscribe pain-l.
vulvarpainforum list was created for women who suffer from any of a number
of manifestations of chronic vulvar pain, known collectively as vulvodynia.
The list, created and maintained by a vulvodynia patient, is intended as a
space for open, candid discussion of available treatments and resources,
as well as to offer emotional support.
subscribe, send an
message and in the body
of the message, put subscribe vulvarpainforum or subscribe vulvarpainforum-digest.
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Non-profit corporation which
supports education and current research concerning FMS and related
disorders. The American Fibromyalgia Syndrome Association, 6380 E. Tanque Verde
Road, Suite D, Tucson, AZ 85715-3822. Phone 520-733-1570.
The CFIDS Association of America, PO
Box 220398, Charlotte, NC 28222-0398. Phone 800-442-3437.
Fibromyalgia Partnership, PO Box 160, Linden, Virginia 22642-5609. Toll
Free Phone 866-725-4404,
Toll Free Fax:
866-666-2727. Editor: Tamara
publications, including lists of your local support groups, and a packet
of information on how to start your own support group. 800-853-2929.
P.O. Box 31750,
Tucson, AZ 85751-1750. Editor:
From Fatigued to Fantastic!
A private health letter. From
Fatigued to Fantastic!, c/o Jacob Teitelbaum, M.D., 466 Forelands Road,
Annapolis, MD 21501. Phone: 800-333-5287.
Vulvar Pain Foundation
203 1/2 North Main Street, Suite 203,
Graham, NC 27253,
336-226-0704 (Tues and Thurs).
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Chronic Pain Association
comprehensive and up-to-date information on over-the-counter and
prescription medications, check out the American Chronic Pain Association
Resource section. The Drugs and Supplement section is a .pdf file and
requires Acrobat Reader.
The Co-Cure list is a
non-discussion list. You cannot post or discuss things; it's for
The list name
"Co-Cure" stands for "Co-operate and Communicate for a Cure."
This list has been
established with the goal of furthering co-operative efforts towards
finding the cure for the illness(es) commonly referred to as Chronic
Fatigue Syndrome (CFS) and Fibromyalgia (FM).
informational site devoted to people who are trying to win Social
Security disability benefits if you have fibromyalgia. It
offers some advice and some useful tips.
Dr. Hal Blatman
When I needed to "Take a layer off
my pain", I knew where to go for help. Dr. Blatman has taken the art of
myofascial trigger point treatment to a new level. Visit the site of
myofascial specialist Hal Blatman, MD, for holistic education on
repetitive strain, myofascial pain and alternative treatments such as
photonic stimulation and reflexology.
Environmental Illness Resource
Provides information, latest
news, articles, links directory, forums and other resources to
sufferers of chronic fatigue syndrome, fibromyalgia, multiple
chemical sensitivity, allergies and other related conditions.
The Fibromyalgia Community
Community offers a wide array of services to Fibromyalgia (and related
conditions) patients and to
those looking for support, information, research and materials to help
family members and friends cope, gain an understanding and solve the
mysteries of this " invisible" disorder.
Canadian charity. Posts links to all of Canada's support
groups on their homepage, and provides links to a wide range of
Chronic illness can be a
severe financial drain. Do you qualify for government
benefits? Find out at this website.
To find out the potential
health effects of household chemicals, as well as the ingredients to more
than 4000 household products, check the National Library of Medicine site.
A website for a wealth of
information on enhancing your abilities to live a full life with chronic
illness. Sections include lifetime modifications to help you move through
life easier, learning tools, accessible transportation and recreation,
work modification resources, finding jobs, workplace resources including
ADA updates, and "Finding the Money" with funding information.
They even have a section on adaptive gardening.
Insurance and Medical Care
Do you need help to navigate the
bewildering world of medical care and insurance? Visit
Irritable Bowel Syndrome Treatment
The site describes and
reviews the many
different treatments available
for IBS, including medications, supplements, and
Joy's Fibromyalgia Survivor's Website
Advice for the newly diagnosed, positive choices and a site just for men
Your Voice Heard
been where just getting up to brush our teeth has been the major
activity of the day, one that results in an immediate collapse. Fortunately, there are several options available for anyone who wants
to get a letter out to senators and representatives.
Men with Fibromyalgia
There is a support group just for you! To
join, send an
message. If you have a problem with the connection,
contact one of the
National Association of Myofascial Trigger Point Therapists
Do you have difficulty finding a
myotherapist who KNOWS trigger points? These therapists
are trained to help you find perpetuating factors, as well as to document
and treat myofascial trigger points. They also have other TrP information, including maps of some common trigger point referral patterns.
National Fibromyalgia Partnership
National Fibromyalgia Partnership, Inc.
(NFP) is the largest non-profit,
membership organization for fibromyalgia (FM)
in the United States. The NFP
provides medically accurate
information on FM to individuals with
fibromyalgia and their families, health care professionals, and
the general public -- both nationwide and in many other
The NFP offers a toll-free
Resource Line which has a fax on demand feature (866/725-4404)
and a toll-free fax (866/666-2727).
for Pelvic Pain and Dysfunction in San Francisco
for men and women.
A christianity-based website for chronic pain, including FMS and
A comprehensive, multi-specialty,
peer-reviewed website for patients with back pain. 123 West
Madison, Suite 1450, Chicago, IL 60602. Spine problems are common TrP perpetuating factors. This site helps you find spine doctors close to you, and has information on minimally invasive spine treatments.
For information on suicide
prevention and hope.
Track your Fibromyalgia symptoms with SymptomLog.com. Most major
health portals offer content and 'symptom checkers' that ultimately
lead to self-diagnosis and its associated risks and pitfalls.
Instead, SymptomLog.com offers a secure and private way for patients
to track their symptoms in a daily log - for printing and sharing
with their healthcare provider. The content is both URAC and HON
fibromyalgia and the thyroid
Dr. John Lowe’s site has a great collection of information and explanations that are
Celeste Cooper's website offers a variety of information on fibromyalgia, chronic myofascial pain and chronic fatigue syndrome.
Dr. Wes Shankland's website
Information on TMJ
and conditions that can be confused with it or aggravate it, as well as
information on dangers associated with root canals, alternate methods of
pain control, and much more.
and effects of Janet G. Travell, MD, one of the founders of
myofascial medicine, have been carefully and lovingly archived at the Gelman Library in George Washington University. If you plan to
visit, please contact them beforehand and read through the carefully
compiled list of documents that are available so that the archivists can
have specific boxes ready and available for you.
Trigger Point Training for Professionals
hands-on training for doctors and other health care professionals on
identification and treatment of myofascial trigger points.
books on our
site are available from:
buy at Amazon?