Williams Syndrome

(This page was last updated on December 25, 2002)

• Diagnosing Williams Syndrome
• Different Minds
  • This article first appeared in Discover magazine in 1991. As it appears here it has been updated given the new information regarding the elastin gene.
• Educational Strategies for People with Williams Syndrome
  • This is a good brief article with suggestions to parents and teachers.
• Frequently Asked Questions
• Guidelines for Psychological Assessment of Young Children with Williams Syndrome
  • This is a very useful resource for professionals who will be assessing children with Williams syndrome. Dr. Levine works at Children's Hospital in Boston, Massachusetts. She is an authority in the area of Williams syndrome.
• Medical Guidelines for Williams Syndrome
  • The "Physical Examinination Protocol for Williams Syndrome" which is listed on this page was published in January 1999. It is an excellent resource list to use when considering the various of needs of person with Williams syndrome.
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• Program for Autism, Prader-Willi Syndrome and Williams Syndrome
  • The Yale Child Study Center Clinic for Genetic Forms of Developmental Disorders provides diagnostic assessment, selected treatment services and opportunities to participate in research, in a systematic and standardized fashion.
• Teacher's Aid on Williams Syndrome
• What is Williams Syndrome?
  • This is a general information site. Good introductory information here.
• Williams Syndrome
  • This is a brief description of Williams Syndrome by Stephen M. Edelson, Ph.D. Center for the Study of Autism, Salem, Oregon
• Williams Syndrome Association
  • A source for the latest information on Williams Syndrome
• Williams Syndrome Foundation
  • This is a fabulous site with lots of great articles and links. I wanted to list each of the articles that I found useful, but they are all linked directly to the foundation's page and can not be separated. So, go and check out the site yourself! Some of the articles I found most helpful are:
    • Adults with Williams syndrome: Guidelines for families and professionals, by Dr. Orlee Udwin, Dr. Patricia Howlin and Mark Davies. I found this article to be very helpful and easy to read and understand.
    • First gene directly linked to Williams syndrome, by Dr. Howard Lenoff
    • So what is elastin? by Dr. Howard Lenoff
    • Guidelines for teachers, by Dr. Orlee Udwin and Professor William Yule. This is a great resource.
    • Williams syndrome: The FISH test for the elastin gene. This site should provide sufficient information to allow you and your family physician to decide whether or not you wish your child to take the test as a diagnostic for Williams syndrome.
• Williams Syndrome: From Brain To Cognition
  • This article is written by two of the main researchers in this field. It is semi-technical and includes some good graphics which help the reader to understand what the authors are speaking about.
• Williams Syndrome -- Information for Doctors
• Williams Syndrome -- Information for Teachers
  • This is an excellent article for teachers. It lists specific strengths and weaknesses common to students with Williams syndrome and offers suggestions which can be easily implemented.

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