was last updated on December 25, 2002.)
about Prader-Willi Syndrome
- This will bring you to
Amazon.Com where a search has already been done for
Questions Families Ask About PWS and Growth
Management for people with PWS
of Prader-Willi Syndrome
- This article has been written
by the Prader-Willi Association of the UK. Their site is a good
one to visit.
- This site is not focused on
people with Prader-Willi but has useful information on one
aspect of this syndrome.
- The Genetic Alliance is an
international coalition representing more than 300 consumer and
health professional organizations with millions of members--all
working together to promote healthy lives for everyone impacted
by genetics. The Alliance supports individuals with genetic
conditions and their families, educates the public and
advocates for consumer-informed public
- Gretton Homes are in England
and provide care and housing for people with PWS. Even if you
don't live in England, you can learn about how they run their
homes and see a wonderful model for long-term living
Prader-Willi Syndrome Organization
Organization for Rare Diseases
- Positively Prader Willi
Syndrome was started to provide mothers of infants and toddlers
with a myriad of information to include: play ideas, discussion
of alternative therapies, feeding and oral motor suggestions,
neuro developmental therapies and other weekly topics of
discussion. Membership is limited to parents only of a child
with PWS 0-5 years of age.
Alliance of New York
- This organization is a
chapter of the Prader-Willi Syndrome Association (USA),
represents the interests of individuals in New York State with
Prader-Willi syndrome, their families, and the professionals
who provide services to the Prader-Willi population. Through
conferences, publications, electronic ommunication and
networking (parent-to-parent, parent-to-professional,
professional-to-professional), the Prader-Willi Alliance
provides a valuable resource for individuals and families
sharing the same concerns.
Alliance for Research
Support Group - A Yahoo list
- This is a list for family and
friends of people with Prader-Willi Syndrome. This list is to
discuss the good and the bad of Prader-Willi and to help bring
us together for sharing info or making friends.
- Prader-Willi Syndrome is a
disorder which is sometimes associated with, but not a subtype
of, autism. Here is a brief description of Prader-Willi
Syndrome by Stephen M. Edelson, Ph.D. Center for the Study of
Autism, Salem, Oregon
- This is a good site which
explains characteristics of people with Prader-Willi
- This site gives historical
background on this syndrome and specific manifestations of
persons with PWS.
Syndrome Association of America
- An organization of parents
and others who are making a difference in the lives of people
with Prader-Willi Syndrome.
Syndrome - GeneReviews
- This is a good site that is
well organized, thorough and easy to
Syndrome - Pediatric Database
- This page gives a brief
history of this syndrome and a considerable amount of
Syndrome of the United Kingdom
for Autism, Prader-Willi Syndrome and Williams
- The Yale Child Study Center
Clinic for Genetic Forms of Developmental Disorders provides
diagnostic assessment, selected treatment services and
opportunities to participate in research, in a systematic and
is Prader-Willi Syndrome?
- This is a good introduction
to this sydrome.
is Prader-Willi Syndrome?
- This is another good
introduction to PWS.
f you want to do your own web search on a particular topic, I suggest using Google.
Click here Google to get there!
Then, follow the directions on that page for a word or topic search.
It's quite easy!
If you want to get in
touch with me, click here: firstname.lastname@example.org
here to get back to my home page.