Prader-Willi Syndrome

(This site was last updated on December 25, 2002.)

• About Prader-Willi Syndrome
• Books about Prader-Willi Syndrome
  • This will bring you to Amazon.Com where a search has already been done for you.
• Common Questions Families Ask About PWS and Growth Hormone
• Dietary Management for people with PWS
• Description of Prader-Willi Syndrome
  • This article has been written by the Prader-Willi Association of the UK. Their site is a good one to visit.
• Eating Disorder Information
  • This site is not focused on people with Prader-Willi but has useful information on one aspect of this syndrome.
• Genetic Alliance
  • The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics. The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies.
• Gretton Homes
  • Gretton Homes are in England and provide care and housing for people with PWS. Even if you don't live in England, you can learn about how they run their homes and see a wonderful model for long-term living situations.
• International Prader-Willi Syndrome Organization
• National Organization for Rare Diseases
• PositivelyPWS
  • Positively Prader Willi Syndrome was started to provide mothers of infants and toddlers with a myriad of information to include: play ideas, discussion of alternative therapies, feeding and oral motor suggestions, neuro developmental therapies and other weekly topics of discussion. Membership is limited to parents only of a child with PWS 0-5 years of age.
• Prader-Willi Alliance of New York
  • This organization is a chapter of the Prader-Willi Syndrome Association (USA), represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population. Through conferences, publications, electronic ommunication and networking (parent-to-parent, parent-to-professional, professional-to-professional), the Prader-Willi Alliance provides a valuable resource for individuals and families sharing the same concerns.
• Prader-Willi Alliance for Research
• Prader-Willi Support Group - A Yahoo list
  • This is a list for family and friends of people with Prader-Willi Syndrome. This list is to discuss the good and the bad of Prader-Willi and to help bring us together for sharing info or making friends.
• Prader-Willi Syndrome
  • Prader-Willi Syndrome is a disorder which is sometimes associated with, but not a subtype of, autism. Here is a brief description of Prader-Willi Syndrome by Stephen M. Edelson, Ph.D. Center for the Study of Autism, Salem, Oregon
• Prader-Willi Syndrome
  • This is a good site which explains characteristics of people with Prader-Willi Syndrome.
• Prader-Willi Syndrome
  • This site gives historical background on this syndrome and specific manifestations of persons with PWS.
• Prader-Willi Syndrome Association of America
  • An organization of parents and others who are making a difference in the lives of people with Prader-Willi Syndrome.
• Prader-Willi Syndrome - GeneReviews
  • This is a good site that is well organized, thorough and easy to understand.
• Prader-Willi Syndrome - Pediatric Database
  • This page gives a brief history of this syndrome and a considerable amount of information.
• Prader-Willi Syndrome of the United Kingdom
• Program for Autism, Prader-Willi Syndrome and Williams Syndrome
  • The Yale Child Study Center Clinic for Genetic Forms of Developmental Disorders provides diagnostic assessment, selected treatment services and opportunities to participate in research, in a systematic and standardized fashion.
• What is Prader-Willi Syndrome?
  • This is a good introduction to this sydrome.
• What is Prader-Willi Syndrome?
  • This is another good introduction to PWS.

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